Other people’s words about … getting sick
In the laboratory on the other hand it is rare that something totally out of the blue occurs. You set your own conditions and to a large extent the future is predetermined. Only some of the details are fluctuant. And even if something unexpected does occur you can usually work out the mechanism, uncover a logic that is always present in nature even if we don’t see it a lot of the time. Whereas in the clinic it sometimes felt as if there was not logic at all and that, when you were talking to the patients about what might happen to them, trying to answer their questions and so on, you might as well read their horoscope. “We’ll see,” you would say whenever a patient asked something as basic as “Will it work, doctor, the treatment?” or “What will happen?”, entirely reasonable questions, you might think, but completely unanswerable. “We’ll see,” you could only say, “we’ll see.”
from ‘This Living and Immortal Thing‘
by Austin Duffy
I used to be one of those people who loved watching medical dramas on TV — the ones set in emergency departments or in GP clinics or centred around a class of student surgeons. (You know the ones I mean.) It wasn’t the medical crises they depicted that I loved; it was the human dramas that the writers of the show wrote around those medical crises, the love stories, the broken hearts, the moral dilemmas — all those.
I’ve grown weary of those medical dramas, though. I don’t know if that’s just because I’ve become a more seasoned and cynical TV watcher overall or because I am more conscious now, as an older woman, of my own real-life encounters with the medical system. Whatever the reason, though, I recently very much enjoyed watching the TV dramatisation of Adam Kay’s memoir, This Is Going To Hurt (which I read some years ago). It’s a series I can highly recommend, even for the most seasoned watcher of medical dramas. (For starters, it’s so much more than a medical drama.)
Another jetty photo! March 2024.
[It felt as though] you might as well read their horoscope, writes Austin Duffy’s narrator, an oncologist turned clinical researcher, in the passage I’ve quoted above. He captures here something I once thought I’d found in the medical dramas I watched (until I saw through their paper-thin, highly sexualised plots). We seek treatment from doctors for our illnesses and frailties, Duffy’s narrator reminds us, but they, our doctors, are only frail, too. Most of the time — I truly believe this — they are working in the dark, making the best guesses they can about how to make us better. Sometimes they get it right; sometimes they get it wrong.
Austin Duffy is himself an oncologist, and he writes beautifully about the medical world and how it intersects with the other parts of our lives, our hopes and longings and dreams. I find it humbling to read the reminder he gives us, through his narrator, that our bodies write their own narratives — and that sometimes (mostly?) all that we, like his narrator, can say about the course of our illness is … ‘We’ll see.’
Lately I’ve been reading …
My novella, Ravenous Girls, is a story about two sisters in the 1980s, one of whom is receiving treatment for anorexia. Outside of fiction, there is some fascinating, erudite and nuanced writing about anorexia and eating disorders, as the articles I’ve linked to below all demonstrate. Each of these pieces, in their own way, moved me and made me think.
- My twin sister (we’re fraternal) is beautiful and accomplished. When we were 14, my sister developed anorexia, impelled by perfectionism, genes, whatever spectral lever it is that tilts the cosmic pinball board and then everything changes. When we were 17, I developed anorexia, impelled by some unpoetic cacophony of motivations: wanting to be close to her, wanting to compete with her, wanting to rescue her, wanting to cancel her out: Katy Waldman, in a stunning article written some years ago about sisterhood and anorexia, recovery and non-recovery, families and love.
- There were two selves: the sane one who wanted to eat and stay alive, and the one who felt somehow saner than sane — more refined, less mundane, eyes on some rarefied vista, voice genderless and supple and curling like smoke — who wanted to starve and die. Or starve and stay alive anyway, like a curiosity in a traveling exhibition. Or starve as a way to stay alive: Suzanne Rivecca, with a piece of writing I don’t know how to describe about the experience of having once had an eating disorder. This is not just an essay — it’s a chant, an invocation, a roar into the darkness. What I mean is that it’s compelling. Read it for yourself to see what I mean.
- “BMI is a terrible marker of anything,” Dr. Gorrell says, referencing body mass index, the simplistic clinical measurement that experts have noted is flawed”: Derek Beres, reporting on the increasing prevalence (or is it just the increasing recognition? I’m not sure) of eating disorders in men. I can think of at least two young men in my circle of acquaintance who I think could be suffering from some kind of eating disorder, and I have sometimes thought about reaching out to them. But despite my own experience of anorexia as a young woman, I am separated from these young men by two things — an age gap of 30+ years, and the fact that I am a woman. I see now, partly from reading this piece, that my experience of an eating disorder was very gendered.
- Even writing this bores me, and if there weren’t some tiny, tiny part of me that wishes I were still sick I would have never wanted to do it: Alice Gregory, reviewing Kelsey Osgood’s How To Disappear Completely. I read Osgood’s memoir some years ago, when it first came out, and like Gregory I was troubled by the way that Osgood, in her efforts to de-glamorise anorexia, only somehow manages to glamorise it all the more. But I also find this review of Osgood’s memoir by Gregory troubling for exactly the same reasons. Is it possible to write about anorexia at all, I wonder, without somehow glamorising it?
twenty-one words 