Category: depression

Loss

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Other people’s words about … doing what we love

It was a lie that Timo had not loved [playing] piano enough. He had loved it very much, but in a way that was difficult to describe. It was apophatic — he could only describe it through its negation. He only understood how much he loved the piano after he had given it up. Even that decision in hindsight seemed arbitrary, a whim. An act of petulance. But he had loved it, and he still did. Every day, he felt like a struck tuning fork, vibrating all the time. Except that it wasn’t pitch he was tuned to but something else, some horrible frequency cutting through the universe. Loss, he thought. It was loss.

from ‘The Late Americans‘
by Brandon Taylor

In the passage above, Taylor’s character Timo is a graduate student in Iowa who used to study music but then gave up. Sometimes, when he is on his own in the apartment he shares with his boyfriend, Fyodor, who works at a meat-packing plant, he sits listening to classical music recordings, losing himself in the music he so loves. But when Fyodor comes home, Timo switches the music off immediately, mid-piece, refusing to talk to Fyodor about this thing he so loves — refusing, also, to allow Fyodor to share in a part of him that in many ways still feels like the truest part of himself.

The Washpool, September 2023.

When I read the words I’ve quoted above, I thought about the times that I’ve given up writing over the years. Though I’m not beginning to claim that I am as talented a writer as Timo is a musician, nonetheless, writing for me has always been a channel of creativity, a tool that helps me make sense of and navigate the world. I don’t know why, honestly. I do know that I have a longing to make something beautiful (though this is another impulse I don’t really understand), and that writing is the only way I know how to (try to) do this. Maybe that’s why, every time I’ve ‘given up’ writing ‘for good’, I’ve returned to the practice later.

I’ve written before about how I’ve learned over the years to value my writing practice for the practice itself rather than for any measurable outcome. That’s partly what I’m saying again here, in response to the words I’ve quoted today. But it’s more than that, too. What Taylor expresses so beautifully is the same sense of loss I always feel when I stop writing. His image of a tuning fork vibrating to the wrong frequency describes this feeling beautifully. At the same time, I’d also describe the feeling another way, as a feeling of being muted. Silenced. When I don’t write, I feel as though I have lost my voice: I feel as though no-one hears me.

I understand, as a writer who is published very infrequently, that few people hear me, anyway. But writing is my way of speaking to the world, and not writing is the opposite of that. Not writing feels like grief.

The Washpool, September 2023.

Meanwhile, I’ll be back soon with another post about writing, and with a little piece of news, the news I’ve been hinting at for months now. Watch this space! ❤

Lately I’ve been reading …

This is me happy

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Other people’s words about … happiness

Ivan closed his eyes. He tried to remember what it was like when [he and Goran] were good and together and all right. He tried to imagine what it was like the first time they met on the app and made plans to see each other outside the auditorium at night. They’d stood on the bridge and looked at the lights of the auditorium, gold and tiered like a delicate rock formation. Then they’d walked around the river path and talked all night about music, about ballet, about where they spent their afternoons, best place for coffee, how to dodge the undergrads.
That night had been so good, like something out of a dream. And they were so far from it now.
‘I can’t make you happy,’ Ivan said.
‘You do make me happy. This is me happy. I am happy.’
‘This can’t be happiness. If this is you happy, then I don’t think I understand what happiness is for.’
‘Sometimes happiness is just letting people feel how they fucking feel,’ Goran said.
He looked the furthest thing from happy. He looked pissed off. He looked annoyed. He looked like he was going to cry. His eyes welled. He bit at the inside of his jaw, then sat down sharply at the kitchen table, trying to catch his breath. Ivan sat down next to him, reached for his hand, and for the first time in a very long time, Goran let him.

from ‘The Late Americans‘
by Brandon Taylor

I’ve been fighting a battle with fleas for the last couple of weeks. This might seem like a random thing to write about after quoting Brandon Taylor’s words about happiness (and love … and life), but somehow it feels directly related.

Lizzie, my rescue cat, the cat who went from living in the garden and not letting me touch her to jumping up on my lap every night and curling up on top of me to go to sleep, started scratching ferociously a few weeks ago. Because I’ve never had a cat before; because I didn’t have any bites or itches myself (and still don’t); because, in all the years I had dogs,they never once got fleas; because, before I moved house a couple of years ago, Lizzie herself had never had fleas; because I thought (wrongly, as it turns out) that, since my house has bare wooden floorboards throughout instead of carpet, it was flea-proof — because of all these things, it took me a while to figure out that the cause of her scratching was fleas.

Semaphore Jetty, August 2023.

She’s far more domesticated than she was when she arrived in the garden of my old house three years ago, but still, a rescue cat is a rescue cat, and there are times when she likes to be touched and times when she doesn’t, times when you can pick her up and times when you can’t. So it took me several days to get her to take the medication, and several days more to get her to allow me to start combing her with a fine-toothed flea-comb. I flea-bombed the main room about two weeks ago, and since then, I’ve been vacuuming every day — every day, God, every day — and slowly, slowly I am getting on top of them.

What has this got to do with the passage I’ve quoted today from Taylor’s wonderful third book, The Late Americans? In part, it has to do with something I mentioned here a while back, some good news I had earlier this year. Astute readers might have guessed when I mentioned it that my news is writing-related, which it is, although I still can’t tell you the details yet because they’re still embargoed. It’s a small thing, a very small thing — a very, very small thing — and yet it’s made me feel part of the publishing world again in a way that I haven’t for over a decade. In this sense, though in a very small way, it’s something that I’ve dreamed of and longed for for a long time.

Spring flowers in the Scrub, September 2023.

And yet. Has my year been any happier because of this news? In a big-picture way, yes. But in a small-picture way, in my everyday life — no. (No, no, no.) Happiness still eludes me. I am not unique in this, I realise. Still, in these past few weeks, as I vacuumed the house and combed my cat and put on load after load of laundry, I found myself returning to Taylor’s words over and over. This is me happy. And: If this is [me] happy, then I don’t understand what happiness is for.

Why do we search for happiness in this way? Why do we expect it, even? I don’t know. I can’t tell you. And still Taylor’s words ring in my ears.

Lately I’ve been reading …

Unlearn

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Other people’s words about … the way we feel

She did not adopt the persona of a lawyer, which was the only thing I’d learned to do. Instead, her own innate mannerisms, her seemingly authentic and unrehearsed responses, were more effective than any behaviour she might have acquired through practice and effort. She knew this, she used it and we won. I left the courtroom feeling slightly different about myself. I vowed to be less afraid to talk in my own voice, or to follow my own line of thought, though I had no clear sense of either of these things. I wanted to learn how to be myself again, having been carefully unlearning it ever since I was born.

from ‘Chrysalis‘
by Anna Metcalfe

It’s funny how you can be struck by a single passage in a book even when the book itself — its story, its characters, its voice, its narrative arc — leaves you cold. That’s how it is for me today, in quoting the passage above. My feelings about Anna Metcalfe’s novel Chrysalis as a whole are ambivalent, but this passage, particularly the last sentence, will never leave me. I wanted to learn how to be myself again, having been carefully unlearning it ever since I was born.

Groundsel flowers, Taperoo dunes, July 2023.

Another way to say what Metcalfe says is: All my life, I have felt as though there is something wrong with me. This is something I’ve written about in blog posts before, this feeling of wrongness, of inner wrongness, essential wrongness. I understand that it’s not unique to me — we probably all feel this way, to some degree. We live in a social world, after all. My life is jumbled up in yours, and yours in mine. Still, this feeling is one I’ve always experienced very strongly.

Something about Metcalfe’s way of putting it, though, particularly resonates with me. It’s the concept of learning and unlearning, I think. Can we unlearn this feeling? Maybe.

Lately I’ve been reading …

Immeasurable

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Other people’s words about … practising art alone

But you have a little secret: while you are not making Art anymore you are at least drawing every day. To tell anyone about this would be admitting there is a hole in your life, and you’d rather not say that out loud, except in therapy. But there you are, once a day, drawing the same thing over and over: that goddamned Empire State Building [which you can see from the floor-to-ceiling window in your new apartment]. You get up every morning (or afternoon, on the weekends, depending on the hangover), have a cup of coffee, sit at the card table near the window, and draw it, usually in pencil. If you have time, you’ll ink it. Sometimes, if you are running late from work, you do it at night instead, and then you add colour to the sketches, to reflect the building’s ever-changing lights. Sometimes you draw just the building and sometimes you draw the buildings around it and sometimes you draw the sky and sometimes you draw the bridge in the foreground and sometimes you draw the East River and sometimes you draw the window frame around the whole scene. You have sketchbooks full of these drawings. You could draw the same thing forever, you realise. ‘No man ever steps in the same river twice, for it’s not the same river, and it’s not the same man’ is a thing you read once. The Empire State Building is your river. And you don’t have to leave your apartment to step in it. Art feels safe for you again, even though you know you are not getting any better at it, that the work you are making could be sold to tourists on a sidewalk outside of Central Park on a sunny Saturday and that’s about it. There’s no challenge to it, no message, just your view, on repeat. But this is all you can do, this all you have to offer, and it is just enough to make you feel special.

from ‘All Grown Up‘
by Jami Attenberg

I have conflicting responses to the passage above. In many ways, Attenberg’s narrator, Andrea, reminds me of myself, although her creative practice is art and mine is writing. I certainly know what it’s like to stop showing people the material you are creating, to keep your practice to yourself, to see it as your own little secret. And I know the feeling that comes with doing this, too, which Andrea articulates elsewhere in her narrative — that feeling that what you are doing, the material you are creating, the act of creating it, is barely scratching a feverish itch.

Something changed for me about a year ago, though, after which I began tentatively showing people something I’d written — a few people, a very few people. This gave me the courage to do more with that particular piece of writing, and as a result I’m not in the same place anymore as Andrea, although all I can say about that for now is that I do have a piece of writing coming out later this year — a small piece, but a piece nonetheless — and I will tell you more when I can.

Reeds in the marsh, The Washpool, July 2023.

But even if things hadn’t changed for me, I suspect that I’d still finding myself wanting to argue with Andrea as much as I’d find myself wanting to agree with her. Because the thing that I learned during those years of writing alone, writing unseen, was that there is a value to creating something — art, literature, whatever — that has nothing to do with other people’s opinions, nothing to do with productivity or acclaim or results. What I learned (very slowly, very painfully) is that creating just your view, on repeat can in fact teach you something; it can take you somewhere new in your work. You may not be able to measure the work you create in private; you may not be able to quantify it. But when did art become something we need to measure and quantify, anyway? When did it become an outcome, a product?

I believe, although it’s taken me years to come to this understanding, that the practice of creating has its own value. The work you do as you create something, that feeling you get as you practise it of reaching out, of bringing something into the world, is an act of connection and hope. This is valuable. This is meaningful. And it can — it can — be enough.

Lately I’ve been reading …

It’s a long list today, as I try to catch up on some of my reading over the last few months. I hope you’ll enjoy one or two of the pieces I’ve listed here.

Grasp

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Other people’s words about … reading

After most of my long days at work, I would arrive back at the flat, pour myself a glass of wine or vodka and read, mainly short stories and poetry. I wasn’t reading novels because I didn’t want that kind of continuity; I didn’t want to carry over any part of narrative from one day to the next. Sometimes I read poetry in languages I didn’t fully understand — with a sense of the meaning, but reaching for it, grasping after it. One of my other pleasures was smoking, but I didn’t dwell or savour; I narrowed it down to lighting up and the first few drags — after that I lost interest. I read like I smoked: fixating on my new favourite in its entirety to begin with and then honing in on the exact phrase or phrases that gave me the fix, then reading only for those, discarding the rest and when that poem had been emptied out, moving on to the next.

from ‘Signs of Life‘
by Anna Raverat

I’m not a smoker and I love reading novels far more than I do short stories or poetry, but still, I found myself smiling in recognition when I read the narrator’s description in the passage by Raverat above about her approach to reading. I experience myself, these days, as a greedy reader — greedy for beautiful words, phrases, images, moments, greedy for the fix they give me, while often the plot or theme of a novel remains distant or abstract to me.

Pathway, Sellicks Beach, July 2023.

Reading has been an important part of my life for as long as I can remember, though the reasons for its importance to me has varied over the years. These days, it feels like an escape for me from the world, or perhaps more accurately an escape into someone else’s world — that world they create with their words. And, like anyone addicted to their fix, I’m not about to give it up.

Little green bench (a place to read in when the warmer weather returns?)
Sellicks Beach, July 2023.

Lately I’ve been reading …

Today’s reading list is exclusively about animals and pets — for all the animal-lovers out there! xo


How are we to know

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Other people’s words about … grief

And one time [Audun] drove in to Advocate Delhis Plass and picked me up off the floor where I was lying flat out on my stomach. Turid and the girls were in Trondheim, and I had no intention of getting up for a good while, but rather preferred to lie there with my forehead ground into the hard cold dusty floorboards, and I thought, how does one measure grief, is there a yardstick for grieving, is there any difference, say, between grieving for one person as opposed to two or three persons, or even four, as in my case, did all this fit on a yardstick, or could the level of grief register as on an instrument, such as a Geiger counter, and the closer the instrument got to the full power, the full height, the full number, the faster and louder the instrument would emit its familiar beep. And how was I to know when there was grief enough, and if grief was liquid like melting silver, could one then pour the grief into a litre measure and conclude, under these circumstances eight decilitres ought to be sufficient, and let the silver congeal hard and shiny not far below the rim. How was I to know. And how was I to know it really was grief I was feeling, it didn’t seem to resemble anything I had seen on film, or what others told me they had felt when their people died, and I was bewildered, for I didn’t cry, and when did one cry really, when you were alone, or in the company of witnesses. And if one were alone, what was the point, when no-one would see it, how was I to know, I didn’t have that yardstick, that litre measure. I had to deal with it myself, was that not so, I let no-one else inside, no-one else’s yardstick was of any use, no-one’s litre measure, and in a way it felt strangely irrelevant, no, not irrelevant, but rather beyond my field of vision. I could barely glimpse a dark swishing tail disappearing, and when I grasped it and held it fast, I was left with nothing but the tail in my hand. The rest was gone, like a lizard sacrificing its tail for freedom. I did try, and hard too, with open eyes to face what had happened, but I didn’t know what to do with what I saw, I had already watched most versions of the issue acted out on TV, they were used up, and I couldn’t think of any others. So then I simply tried not thinking about it at all. That didn’t work either. And so instead I wanted to find an image that could cover all this, after all it was my job, to turn the whirling liquid into something concrete, turn the waves of distracting electric shocks to the stomach into solid surface. but I didn’t have any images that were large enough, firm enough, and after a while I found it pretty exhausting. So I lay there until Audun arrived. He walked straight in, the door wasn’t locked, I had forgotten as usual, and before even seeing me, he said into the hallway, hello Arvid, for Christ’s sake, why don’t you answer the phone when I call. And it was true, often I didn’t answer, it was a breach of every rule, but I was afraid there might be an undertaker at the other end, although I knew the funerals I was supposed to attend lay behind me for now. And there came Audun, in through the living-room door and he saw me on the floor and said, what the hell are you doing down there. I’m thinking, I said. All right, he said, so what are you thinking about. Litre measures, I said, yardsticks, that kind of thing. Okay, he said, that sounds practical in a way, but you can get up now. I’m not sure I can, I said down into the floor, my lips cold against the cold planks, covered in dust, the vacuum cleaner hadn’t been out for a good while. Yes, you can, he said, just do it, and I’ll go to the kitchen and put the kettle on for coffee.
Ten minutes later when he came back with two full cups of coffee and milk and sugar on a tray, I was sitting on my chair at the desk. It wasn’t exactly Mont Blanc, but it had been a long climb.

from ‘Men in My Situation‘
by Per Petterson

I am thankful to say that I have never experienced a grief or sorrow of the kind that the narrator in the passage above, Arvid, has experienced, having lost his parents and siblings to a tragic accident at sea. But Petterson’s words, voiced through Arvid, move me all the same. Elsewhere, Arvid says, ‘[T]o be honest I was in a state of bottomless despair, it was the worst time, by far, I felt quite naked, quite cold’. And I think this is what the longer passage I’ve quoted in this post describes, really — Arvid’s feeling of utter nakedness in the face of his loss.

This is what I love about fiction, the way someone else’s words can move you to tears and wonder. That’s all from me today — I will leave you with Petterson’s words, however you measure them, and however they move you.

The Washpool, Sellicks Beach, July 2023.

Lately I’ve been reading …

Ravaging

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Other people’s words about … growing older as a woman

The things they don’t tell you about menopause are multiple and ever-changing, newly horrifying with every fresh wave.

I know there are positives. Apparently you no longer care what people think about you. Apparently you have come into your power, you are a wise elder, you don’t give a shit about what anyone else might say.

Only you do. The thing no-one tells you about menopause is that you look like you don’t care because your face is set that way, because you get used to trying not to care until you imagine it is true. But you do care. It is ravaging and you do care, you really do.

from ‘Fat Girl Dancing‘
by Kris Kneen

I can’t think of a time when I didn’t care about what other people think about me. I have always been someone who cares too much about this, who compares myself with others and finds myself wanting in every way I can think of to be found wanting.

This hasn’t changed as I’ve got older. Like Kneen, I’ve heard the truisms around ageing; I’ve listened to and read the interviews in which famous older women tell their interviewer that at fifty/sixty/seventy they feel wiser/calmer/happier/more beautiful than at any previous stage in their life — and I’ve believed them. (Let it be said, I am somewhat suggestible when it comes to what other people say. It comes with the territory.)

Sunset, Taperoo Beach, June 2023.

I was thinking, when I first read Kneen’s words, about writing a post here about how we as women are objectified; about how that’s why, when we reach menopause, we feel the way Kneen describes; about how, though objectification feels odious, being silently discarded feels even worse. But this morning as I sat down to write this post, I found that what I wanted to say was something else.

What I really want to say is that one of the things I have come to realise as I grow older is that the pieces of received wisdom I’ve absorbed over the years rarely work for me when I try to apply them to myself. Over and over again over the years, I’ve had to discard those generalisations — about living, about being a woman, about growing older, about finding some level of happiness or contentment or peace — and find my own truth.

At fifty-two, I certainly don’t feel that I am coming into my power, and I could not feel further from being a wise elder. But I do know that in the years that lie ahead of me, if I am lucky enough to live them, I will continue to need to find my own path through life. I will continue to need to turn away from those truisms and pieces of received wisdom about how my life should appear to me. And I will continue to need to be less suggestible. Because I do care; I really do. I always will.

Black and white, Taperoo Beach, June 2023.

Lately I’ve been reading …

Solace

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Other people’s words about … stepping outside

I went outside. Often I walked till the late hours. The sky’s was a darkness I could deal with. I wanted to stop living by the measures of everyone else: before and after, death and life, sea and self. Being out there — in towns where I spoke to no-one, in green deserted parks, along the edge of the gulf’s water — allowed me to turn inwards. It reflected the silence I felt in me. I wanted to be outdoors for good. Yes, I went outside.

from ‘The Memory Artist‘
by Katherine Brabon

Pasha, the narrator of Katherine Brabon’s novel The Memory Artist, is a Russian man in his mid-thirties, a writer trying to make sense of his life post-glasnost, post-perestroika. While the story in Brabon’s novel is about the effect of political repression on people, and particularly on artists, I found uncanny echoes in Pasha’s voice of my own thoughts and feelings (although not, clearly, in response to any political repression or trauma, neither of which I have experienced).

Sky and Sea, Snapper Point, April 2023.

I wanted to stop living by the measures of everyone else, Pasha writes, by which he means not that he wants to stop living, but that he wants to accord his own values to this life he is living. Where he finds it most possible to do this is outside, under the great arch of the sky.

It’s a similar impulse, I think, that makes running so appealing to me — running through the scrub, running on the beach, running beside the sea. It’s outside where I find some of the things I most long for in life: silence, neutrality, the sense that I could (if I went on running long enough, if I stayed outdoors long enough) dissolve.

Sometimes, when I’m inside going about my day — working, sleeping, eating, showering — I remind myself that the sky is just a few steps away, literally at my feet. It feels to me like the very definition of solace.

Sun and shadow, Aldinga Beach, April 2023.

Lately I’ve been reading …

An apology of sorts: today’s list is lengthy, I know, but it’s been a while since I last posted here, and meanwhile I’ve been enjoying my online reading! I hope you will dip in and out of the list below and find something that you enjoy.

How to write

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Other people’s words about … writing (and shame)

The voice I wrote with felt new to me — unrestrained. For years I had been trying to cool down the temperature of my writing, to pull it back, pull it back, pull it back — neutralise it, contain it, make it crisp, clear, and sharp, every word carved out of crystal. This writing was nothing like that — it was drippy, messy, breezy. I was working through a mind frame, not a conceit. I was creating a world, not words on a page.

from ‘Vladimir‘
by Julia May Jonas

There is a practice called Loving Kindness Meditation that I first encountered some years ago when I was participating in a forty-day meditation challenge that involved raising money for a particular charity by pledging to my sponsors to meditate for ten or more minutes every day for forty days. Although I tried many different kinds of meditation during those forty days, and although ultimately I didn’t keep meditating after the challenge was over, the idea behind Loving Kindness Meditation has stuck with me. Essentially, this kind of meditation is about generating, through your meditation practice, kindness and love to other people — as well as to yourself.

There’s a quote by Femi Kayode about writing that I keep close to me whenever I myself am writing. I don’t remember where I got the quote from, and I’ve tried but failed to trace it back to its source. In it, though, Kayode says:

Most of all, write in love. Love for the characters — good or bad, and the story. Love for the reader, for the craft, for humanity. An unconditional compassion for the human condition is the one true gift I believe a writer can give the world.

I thought about Kayode’s words when I came across the passage I’ve quoted at the start of this post, from Julia May Jonas’s wonderful novel Vladimir. The narrator in Vladimir is, like me, a middle-aged female writer who has had two novels published early on in her writing career but has struggled to bring out a third novel. Now, when I think about the ten years I spent between having my second novel for young adults published and submitting my third manuscript to my agent, a novel for middle-grade readers that remains as yet unpublished, what I remember most is how I wrote and rewrote the same manuscript, then wrote and rewrote it some more, all the while trying to perfect it — all the while not understanding that there is no such thing as perfect, and that the search for perfection can take you a long way away from the place you started, that place of excitement and hope.

Stormy skies over the Port River, Port Adelaide, February 2023.

I mentioned recently that I’ve now begun working on a fourth manuscript, a literary fiction novel. This time around, in an attempt to break free of the tangle of lonely perfectionism that I’d somehow found myself ensnared in during the writing of my third novel, I’ve deliberately sought feedback from readers early on in the process. Predictably, some of the feedback I’ve received has been positive, and some less so. Your writing lacks introspection, one reader said. And: We never really get to know or understand your narrator, so it’s hard to care about what happens to her.

To be honest, I was a little shocked when I got this feedback. I thought I’d been writing with great restraint; I thought I’d been ‘showing, not telling’; I thought I’d been practising the principle of ‘less is more’. All those old writing saws. But I’ve slowly come to see, as I’ve mulled this feedback over, that in writing this way I’d been falling into the same trap as Jonas’s narrator, trying to carve my words out of crystal. To neutralise my writing. To contain it. To pull it back.

And here is where I find myself returning to the idea of loving kindness and compassion that I began this post with. It’s okay to try to improve your writing, to see the flaws in it and work hard to make it better: more interesting, perhaps, or more insightful, or more moving. But trying to improve your writing isn’t the same thing as condemning it. Because what is the act of trying to neutralise your writing other than a reflection of your own self-doubt and self-hatred? What is the act of trying to contain your words and thoughts other than a reflection of the shame you feel about yourself? What is this whole painful process, other than a way of saying to yourself that your writing is not good enough? That your characters are not good enough? That you, by extension, are not good enough?

Calmer waters, the Port River, Port Adelaide, February 2023.

In the end, what I’ve learned from all of this over the last few weeks (or perhaps over the last ten years) — what I’ve learned from Jonas’s words, and from the words of those people who were kind enough to read my manuscript and give me feedback, and from, finally, the words of Kayode — is that writing, any kind of writing, can’t come from a place of shame.

If, as a writer, you ask your readers to care about your characters, then you have to allow yourself to care about your characters, too. You have to write from a place of compassion. You have to write — yes — in love.

Lately I’ve been reading …

Please

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Other people’s words about … chronic pain

I told [my parents] how that afternoon I had actually gone and seen another psychologist [for help with my chronic migraine]. I was just feeling so low and so down, and a friend had recommended her, and she could squeeze me in. I told her the pain would come and the pain would go, and that I couldn’t control it, that some days I would be fine, more than fine, ecstatic, but that other days the pain would return and I would slide into a depression so deep I could not see my way out. I told her I felt like a rat in an experiment, a rat made to drink water — sometimes the water was normal but other times the water shocked with an electricity so violent that I would swear never to drink it again, but then I would see everyone else drinks water and I would wonder why I couldn’t do that too. I told her I just wanted to drink the water. Sometimes I could, but mostly I couldn’t and I never knew when. I told her I just wanted to know why. It had been years since I’d had the initial migraine, but even now, right then, the pain had returned and I couldn’t read or write or — I told her I was sick of being an experiment, that I just wanted answers, someone to help. Then I asked her if she could help. I asked if she’d ever heard of anything like this before and then I told her please. I said, Please, I would just really appreciate it if you could help, and she just smiled and told me she’d seen it all before. Then she got out a piece of paper and a pen and told me to rewrite negative self-thoughts as positive self-thoughts. I asked her what she meant. She said, Well, you could rewrite ‘I am worthless’ as ‘I am special’; ‘I am alone’ as ‘I am loved’; ‘I am useless’ as ‘I am capable’. And then she sat back and pushed the pen and paper towards me and told me to try. I told Mum and Dad I just got up and left, then — because I knew she was just the same as everyone else — full of bullshit just like the whole world was full of bullshit. I told them it was like I was eight years old, and everyone was playing pretend.

from ‘Train Lord‘
by Oliver Mol

There was a period in my life some years ago when a headache settled over me which, despite all the cures and treatments I tried in response to it (both conventional and alternative) would not fade away. Unlike the chronic headache that Oliver Mol describes seeking treatment for in the passage above, my headache wasn’t a migraine: the pain I experienced was of a milder kind, what doctors call a tension headache. This meant that, unlike Mol, I could still function. That is to say, I could still present to the world an image of myself functioning. Unlike him, I could still read and write; I could still watch television and use computers; I could still get myself to work.

Still, the pain during that period was omnipresent. It varied in intensity: sometimes it was faint, just a light tingling sensation at the edge of my eyelids or (oddly) inside my nose; sometimes it was strong and persistent, as though someone had lodged a heavy, blunt object (a hammer? a mallet?) into the top of my head and was pressing this object — pressing and pressing it — down into my skull. Sometimes the headache made me feel dizzy and sick, and this, because of my phobia about vomiting, triggered bouts of anxiety that weakened my ability to cope with the pain. On days like that, I felt desperate. I made a mask of my face in social contexts; I disappeared from my desk at work to cry behind the closed door of a toilet cubicle; I made excuses and went home early from gatherings (or didn’t go to them at all). I felt myself, or the person I thought of as myself, slowly disintegrating.

I hadn’t known until then how much my sense of myself as a social creature, and as a socially worthy creature, was predicated on an assumption of my good health. I’ve since learned that this is an experience common to people experiencing chronic pain or illness, but I didn’t know that then.

Aldinga Scrub, summer flooding, January 2023.

Mol’s migraine lasted ten months initially (although later it returned for another few months). My headache faded away around the two-year mark. I still don’t know why, really — whether the cure was due to something I did, or to one of the treatments I tried, or simply to plain luck. Sometimes it returns, settling over me for a day, or a few days, or a week, or a few weeks — but eventually it leaves again. And because of this, because the pattern has changed, because I know now, or at least allow myself to assume, that the pain is only temporary, I have learned simply to wait it out when it visits. To let it run its course.

And yet. That word: temporary. And then I told her please, Mol writes, and that’s what it feels like, even now, when I’m in the midst of a long headache: a prayer to someone, anyone, to make sure that the pain is only temporary, that it won’t take over again the way it did for those two years. Because once you’ve felt it, you never forget it: the way pain changes you, the way it writes itself on you, the way it renders you powerless. The way it robs you of yourself.

This, I think, is what Mol’s psychologist failed to see. Perhaps the worst thing, when you are experiencing chronic pain or illness, is the sense of betrayal that accompanies your pain. You feel, first, as though your body has betrayed you, this body you have been lucky enough never really to have thought about before, which until now has performed for you mostly without pain or grievance; and then, second, as though the people around you — the ‘experts’ you have consulted — have betrayed you, too, with their so-called treatments and cures, with the promises they make you, with the money they take from you, all to no end; and then, third, as though the world itself has betrayed you, in its refusal to operate in a way that is manageable or meaningful for you in your pain.

If, in the end, you are lucky enough to get relief from your pain, what you never quite forget is that when you were in pain, you changed. You no longer knew yourself. You became a person who said, Please.

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