Please

Other people’s words about … chronic pain

I told [my parents] how that afternoon I had actually gone and seen another psychologist [for help with my chronic migraine]. I was just feeling so low and so down, and a friend had recommended her, and she could squeeze me in. I told her the pain would come and the pain would go, and that I couldn’t control it, that some days I would be fine, more than fine, ecstatic, but that other days the pain would return and I would slide into a depression so deep I could not see my way out. I told her I felt like a rat in an experiment, a rat made to drink water — sometimes the water was normal but other times the water shocked with an electricity so violent that I would swear never to drink it again, but then I would see everyone else drinks water and I would wonder why I couldn’t do that too. I told her I just wanted to drink the water. Sometimes I could, but mostly I couldn’t and I never knew when. I told her I just wanted to know why. It had been years since I’d had the initial migraine, but even now, right then, the pain had returned and I couldn’t read or write or — I told her I was sick of being an experiment, that I just wanted answers, someone to help. Then I asked her if she could help. I asked if she’d ever heard of anything like this before and then I told her please. I said, Please, I would just really appreciate it if you could help, and she just smiled and told me she’d seen it all before. Then she got out a piece of paper and a pen and told me to rewrite negative self-thoughts as positive self-thoughts. I asked her what she meant. She said, Well, you could rewrite ‘I am worthless’ as ‘I am special’; ‘I am alone’ as ‘I am loved’; ‘I am useless’ as ‘I am capable’. And then she sat back and pushed the pen and paper towards me and told me to try. I told Mum and Dad I just got up and left, then — because I knew she was just the same as everyone else — full of bullshit just like the whole world was full of bullshit. I told them it was like I was eight years old, and everyone was playing pretend.

from ‘Train Lord
by Oliver Mol

There was a period in my life some years ago when a headache settled over me which, despite all the cures and treatments I tried in response to it (both conventional and alternative) would not fade away. Unlike the chronic headache that Oliver Mol describes seeking treatment for in the passage above, my headache wasn’t a migraine: the pain I experienced was of a milder kind, what doctors call a tension headache. This meant that, unlike Mol, I could still function. That is to say, I could still present to the world an image of myself functioning. Unlike him, I could still read and write; I could still watch television and use computers; I could still get myself to work.

Still, the pain during that period was omnipresent. It varied in intensity: sometimes it was faint, just a light tingling sensation at the edge of my eyelids or (oddly) inside my nose; sometimes it was strong and persistent, as though someone had lodged a heavy, blunt object (a hammer? a mallet?) into the top of my head and was pressing this object — pressing and pressing it — down into my skull. Sometimes the headache made me feel dizzy and sick, and this, because of my phobia about vomiting, triggered bouts of anxiety that weakened my ability to cope with the pain. On days like that, I felt desperate. I made a mask of my face in social contexts; I disappeared from my desk at work to cry behind the closed door of a toilet cubicle; I made excuses and went home early from gatherings (or didn’t go to them at all). I felt myself, or the person I thought of as myself, slowly disintegrating.

I hadn’t known until then how much my sense of myself as a social creature, and as a socially worthy creature, was predicated on an assumption of my good health. I’ve since learned that this is an experience common to people experiencing chronic pain or illness, but I didn’t know that then.

Aldinga Scrub, summer flooding, January 2023.

Mol’s migraine lasted ten months initially (although later it returned for another few months). My headache faded away around the two-year mark. I still don’t know why, really — whether the cure was due to something I did, or to one of the treatments I tried, or simply to plain luck. Sometimes it returns, settling over me for a day, or a few days, or a week, or a few weeks — but eventually it leaves again. And because of this, because the pattern has changed, because I know now, or at least allow myself to assume, that the pain is only temporary, I have learned simply to wait it out when it visits. To let it run its course.

And yet. That word: temporary. And then I told her please, Mol writes, and that’s what it feels like, even now, when I’m in the midst of a long headache: a prayer to someone, anyone, to make sure that the pain is only temporary, that it won’t take over again the way it did for those two years. Because once you’ve felt it, you never forget it: the way pain changes you, the way it writes itself on you, the way it renders you powerless. The way it robs you of yourself.

This, I think, is what Mol’s psychologist failed to see. Perhaps the worst thing, when you are experiencing chronic pain or illness, is the sense of betrayal that accompanies your pain. You feel, first, as though your body has betrayed you, this body you have been lucky enough never really to have thought about before, which until now has performed for you mostly without pain or grievance; and then, second, as though the people around you — the ‘experts’ you have consulted — have betrayed you, too, with their so-called treatments and cures, with the promises they make you, with the money they take from you, all to no end; and then, third, as though the world itself has betrayed you, in its refusal to operate in a way that is manageable or meaningful for you in your pain.

If, in the end, you are lucky enough to get relief from your pain, what you never quite forget is that when you were in pain, you changed. You no longer knew yourself. You became a person who said, Please.

Lately I’ve been reading …

Speak

Other people’s words about … despair

She sat across from him. For some reason, he removed his glasses and set them on the gold table. His naked eyes were as dark as the burnished leather they sat on and held a startling amount of despair. The effect struck her as indecent, as if he’d disrobed. ‘Put your glasses back on,’ she wanted to tell him. ‘For God’s sake.’

from ‘Vacuum in the Dark
by Jen Beagin

I’ve been thinking a lot recently about the things people say to each other and the things they don’t. And about subtext, which is not quite the same thing but is part of it all the same.

Over the last couple of years, having written and submitted a middle-grade fiction manuscript to my agent which has as yet to find a home with a publisher, I’ve been writing a literary fiction manuscript. I haven’t mentioned this here till now, in part because my writing in that area is still so new and tentative, and in part because when I say the words, ‘I am writing a literary fiction manuscript’, all I hear is my own internal mocking laughter.

You? says the voice in head, that little internalised voice. How could you possibly presume to have something to say in the literary fiction field? How could you assume that much writing talent of yourself? That much wisdom?

Bracken fern, light and shadow, January 2023.

It’s impossible to say whether what I’m writing will ever be something complete, let alone publishable. That’s the risk any writer takes, whether they have had previous books published, as I have, or not. But what I am writing about in that manuscript is in part what Jen Beagin describes so beautifully in the passage I’ve quoted above: our unwillingness to witness each other’s despair. Our inability to talk about it or bring it to light. Our constant need to reassure each other with upbeat, optimistic conversation and good cheer.

I am not by nature a cheerful person. Nor am I an optimist. Nor am I a skilled conversationalist. At fifty-two, I still find myself getting midway through a conversation with another person, only to realise that I have revealed too much of myself: my fears, my doubts, my sadnesses. (Actually, ‘I still find myself’ is the wrong way to put this; in fact, the right way to put this would be, ‘I increasingly find myself’.) Maybe this isn’t evident to the person I’m talking to, or maybe it is. I’m never sure. But I often feel like the man Beagin describes in the passage above: glasses off, the truth in my eyes revealed. This is not a comfortable place to find myself.

But increasingly I believe in the importance of confronting the secrets we see in other people’s eyes. I believe in meeting those secrets head-on. I believe in talking about them. Perhaps what I am saying here is that secrets don’t have to be the subtext to the conversations we have with other people: they can be the essence of our conversations. They can be where we meet.

Common everlasting flowers, January 2023.

Lately I’ve been reading …

Roar

Other people’s words about … country and city life

Ramesh was used to the sounds of the suburbs. He never noticed barking dogs or level crossings. On the train to work every morning he turned up the volume of his audiobook so it was louder than other passengers’ mobile phone conversations. But [tonight he was in] the country [and it] roared. He could hear the air move in the trees. He had grown up in Croydon, moved to Glasgow at seventeen, back to London at twenty-three, then Sydney at thirty-six. As a child he’d stood outside his parents’ bedroom listening to his father’s whistling snore. He liked living in places where he could hear others alive. He reached for his phone where it sat charging. For an instant he saw his hands illuminated in the bluish light of its screen. He set his rain sound app to the setting called ‘Harbour Storm’.

‘What are you doing?’ Henry croaked. His face was pressed to the pillow. ‘You don’t need that tonight.’ 

Ramesh opened his mouth to argue, then he heard the rain outside, like gunfire on the corrugated iron roof.

from ‘Pulse Points
by Jennifer Down

I love this passage, not because I’m in accordance with Ramesh, but for the opposite reason. I love the ‘roar’ of the country. I spend most of my time living in a house in the suburbs. It’s close to the beach, which I love, but it’s even closer to the railway line, a line that trains zip up and down every half an hour from five in the morning until midnight.

Sunset, early August 2022.

I don’t mind the sound of trains, actually — as suburban sounds go, I find it vaguely comforting — but when I leave my house to stay outside the city, to visit Aldinga Scrub or to camp in Yorke Peninsula, I feel a knot inside my chest of which I wasn’t even aware releasing itself.

Sounds I love when I am away from the city: the dull roar of the ocean at the end of the road (yes, another roar). The whistle of a hot wind through the trees. A frogmouth letting out its low, persistent, booming call at dusk. A shrike thrush singing. A magpie warbling. Frogs croaking. Insects clicking in the grass. And, yes, like Ramesh, the rain drumming on the roof.

Still, the photo accompanying my post today, like so many of my photos on this blog these days, comes from the suburban beach at the end of the street I live on. The sand is being eroded away and there are car parks dotted along the coast line and on most weekends a food truck selling hot donuts sets up shop during daylight hours.

But it’s still the beach. It’s still wide and beautiful and open and … The sea still roars.

Lately I’ve been reading …

It’s a lengthy list today, because I’ve been reading far more than I’ve been posting. But I hope you find something interesting below.

Revelation

Other people’s words about … secrets

‘Philip,’ [his mother Rose] said. ‘There are things I could tell you.’
‘Tell them,’ Philip said.
‘No.’
‘Why not? I’m prepared.’
She turned, looked at [Philip’s father Owen] slumped on the sofa. ‘Because I don’t believe that just because something’s a secret it therefore by definition has to be revealed,’ Rose said. ‘Keeping certain secrets secret is important to — the general balance of life, the common utility.’

From ‘The Lost Language of Cranes

by David Leavitt

I have always been fascinated by people like Philip’s mother Rose in the passage above: people who keep their own counsel. I have a tendency to do the opposite — to over-share, to talk to people for advice, to feel guilty if the life I lead isn’t entirely transparent. I’m not sure why. I may just be wired that way, but I suspect that years of therapy during adolescence and early adulthood ingrained this way of being in me. When you are used to talking things through with someone on a weekly basis, it can feel odd — unsafe, even — once you stop.

Gnarled trunk, early July 2022.

I like Rose’s matter-of-fact statement that secrets don’t have to be revealed. Sometimes, when I am uncertain about a course of action or a decision I have to make, I think of the oath that I’m told doctors must take: ‘First, do no harm.’ I find this oath, applied to life in general, one of the most useful creeds I know.

And so I find myself thinking that Rose may be right. If keeping a secret doesn’t harm anyone, then why feel compelled to reveal it? Why not learn to live in silence with one’s own truths?

Waterways, early July 2022.

Lately I’ve been reading …

Only connect: Reunion

Other people’s words about connection

Maude cranes around to look and Cormac looks too, close enough to see them, all quite young and glacially made up with one man of height and handsomeness towering over the rest and another, a man to the tall one’s left, cocking his head and nodding in Cormac’s direction meaningfully.
It is Senan. Cormac waves …
He hasn’t seen Senan in person for months and yet his vision still telescopes in, urgent and unreconstructed, so that Cormac sees and knows again he loves him with a scratchy passion that returns as reliably as a rash. It is not a nostalgic feeling and casts no shadow, existing always in a self-sustaining now.
How acute it is: immediate deja vu.

From ‘We Were Young

by Niamh Campbell

I love this passage from Niahm Campbell about a man reuniting with someone he loves after the two of them have spent some time apart. Cormack, the character in Campbell’s novel, seems unable to commit to one person, whether man or woman; he moves from one relationship or liaison to another. But as a backdrop to all his attempts to remain unfettered there is his love for Senan, a man who is smart enough, perhaps, to keep himself unavailable and therefore always desirable and lovable.



Sunlight and trees, April 2022.


Who hasn’t at some time in their life loved someone who was unavailable? Or, moving beyond relationships and intimacy, who hasn’t wanted something that was eternally just out of reach?


Grasstree, May 2022.

Lately I’ve been reading …

Absolution

Other people’s words about … being loved

We were sitting on a cushioned bench [in the pub]. Eddie had one thick thigh crossed over the other, and he was wagging his right foot gently. He was wearing beautiful Italian brogues and talking to the man next to him, laughing at something a little too loudly, and then suddenly he turned to me, rested his hand on my leg and asked softly was I okay.
‘You okay there, pet? Can I get you something?’
It was there in the tone. I knew that I was loved as I had never been before. I don’t mean that Eddie loved me with remarkable passion or insight. I don’t mean that I felt most fully myself with him. I mean that, in the strangest way, I felt forgiven. For as long as I could remember there’d been a vague disquiet in me, as if I lived in the shadow of some humiliation whose particulars I could not recall. Until Eddie, until he absolved me, I hadn’t known there was any other way to feel.

From ‘When Light is Like Water

by Molly McCloskey

In the last few years I’ve noticed that when I’m reading a book or watching a movie the two kinds of scenes that most move me are those where two people connect for the first time (mostly, though not always, through falling in love) and those where someone forgives someone else.

Both kinds of scenes make me cry. I’m still not sure whether my tears come from a place of catharsis or from a place of yearning.


Port Adelaide, early April 2022.

I particularly love how Molly McCloskey’s narrator, Rachel, elucidates her experience of falling in love with her first husband in the passage above: how she moves away from romance to something gentler, and kinder, and deeper.

Like Rachel, I can’t remember a time when I didn’t live with a sense that I was inherently wrong, flawed, in need of forgiveness. I sense that my experience is a relatively common one, but I also sense that in me the feeling is perhaps particularly strong.


Aldinga wetlands, April 2022.

How to manage anxiety: Be kind. Be curious. I read these words somewhere once. I remind myself of them from time to time. In their simplicity and compassion, they are helpful. What McCloskey’s narrator Rachel understands in the passage above is that kindness is inherent in true love. I think that’s why her words move me so much.

Lately I’ve been reading …

Wordless

Other people’s words about … the things we say

All that talking, years of reading: There was a time I thought that all language might contain something of value, but most of life is flat and boring and the things we say are too. Or maybe it’s that most of life is so much stranger than language is able to make room for, so we say the same dead things and hope maybe the who and how of what is said can make it into what we mean.

From ‘Want

by Lynn Steger Strong

I’ve been posting less and frequently on my blog over the last few months, I know. And it’s not, as you might think, because I have become more active on other (more instant) social media, though I can see the appeal of posting photographs (excluding selfies) on Instagram. 



Spring flowers, Aldinga Scrub, 2021.

In fact my quietness on this blog is more to do with the fact that most of life is so much stranger than language is able to make room for, as Lynn Steger Strong puts it so wonderfully in the passage I’ve quoted above. The Covid-19 pandemic, now entering its third year globally, has left me feeling, in the truest part of me, wordless. I am surviving, for which I am grateful. I am getting on with my life. But I don’t know how to put that into words very well, or at least not in the form of a blog post. I enjoy blogging, and I like my space in the blogosphere, so I hope that this phase will pass. But in the meantime … here I am, not finding the language I need to say what I want to say.





Pathway, Aldinga Scrub, 2022.

Another reason for my quietness on this blog is that I’ve been doing a different kind of writing in my spare time recently, which is to say I’ve started writing fiction again. As I mentioned in my previous post, last year I submitted the manuscript of a middle-grade novel to my agent, who is currently trying to find a publisher for it. (No luck yet.) And now, somehow, I find myself writing a novel for adults. I don’t know whether any of the fiction I’ve written since the beginning of the pandemic will ultimately be publishable, but somehow, entirely unexpectedly, it seems that I’ve found the courage to try again, and because of that very unexpectedness, I’m allowing myself to honour my courage for now and see what happens.

Life continues, albeit quietly and unexpectedly, I suppose is what I’m saying. Sometimes I have the words for it and can compose a blog post about it and sometimes I don’t. But I will keep trying. That’s a promise.





Wordless, 2022.

Lately I’ve been reading …

 

Legacy

Other people’s words about … a beached whale

For as long as there have been humans, the whale has been a portentous animal. A whale warrants pause — be it for amazement, or for mourning. Its appearance and its disappearance are significant. On the beach, an individual whale’s [beaching and] death may not prove ‘global’ in the way of its body powering down abruptly, like a switch being flicked, but, in a different sense, the deaths of whales today are global. The decline of a sperm whale — [its belly, when dissected post-mortem,] filled with sheeting and ropes, plant-pots and hosepipes — belongs to a class of environmental threat that, over the past few decades, has become dispersed across entire ocean systems, taking on transhemispheric proportions. This whale’s body serves as an accounting of the legacies of industry and culture that have not only escaped the limits of our control, but now lie outside the range of our sensory perception, and, perhaps even more worryingly, beyond technical quantification. We struggle to understand the sprawl of our impact, but there it is, within one cavernous stomach: pollution, climate, animal welfare, wildness, commerce, the future, and the past. Inside the whale, the world.

From ‘Fathoms

by Rebecca Giggs

If you want to read only one book about climate change, and if you want that book to be one whose narrative ranges from the scientific to the literary to the philosophical to the emotional, and if you want it to be a book that explores metaphors and symbols right alongside facts and evidence, then Rebecca Giggs’s book is the one I’d encourage you to read. We struggle to understand the sprawl of our impact, Giggs writes of climate change. But if you read her book you will come closer to understanding.

Vista.

 

I’ve been quiet here on my blog recently, mostly because it’s hard to know what to say right now. The global pandemic continues. So does the climate emergency. And so, too, does my own little life, which I continue to pass by walking on the beach, by showing up to work, by writing a book that I hope one day will be published, by (maybe) moving house, and by growing older but not necessarily any wiser.

The pictures in today’s post come from a holiday I took last month in Deep Creek, a national park in the heart of the Fleurieu Peninsula. In my next post, I’ll feature more photos from the same part of the world, a part of the world so beautiful it’s hard not to feel your heart break with wonder and awe as you move through it.



Grasstree world.

Transhemispheric. That’s not a word I’ve come across before, but it’s an apt one to use if you’re trying to comprehend the size of humanity’s impact on the natural environment. I thought about that, too, while I was in Deep Creek. I thought and thought and thought.

Lately I’ve been reading …

Do what you love (if you can)

Other people’s words about … running, and life

I turned in the manuscript in September. I stopped seeing friends and only showered on days I ran and they weren’t even good runs. They were short, stuttering attempts that maxed out at 2 miles. I found no joy in them. They no longer served a purpose — not even a dark one … I set out on runs hoping I’d feel that soaring feeling from the year before, but it never came. I’d run, then walk. Sometimes I sat down. Once I lay down on a pile of leaves in the park. I didn’t care if I scared another toddler or his mother. I was too tired to move on, and stood up only after I was almost run over by a landscaper on a lawn mower bagging leaves.

From ‘Running: A Love Story’
by Jen A. Miller

I started running again recently, after a long time of not running (months, even). Just as Jen Miller describes in the passage above, my attempts right now are slow and stuttering, although the reason for this in my case isn’t heartbreak or depression, as it was for Miller, but rather the need to come back slowly and tentatively, as I regain my strength after an injury, which turned out to be peroneal tendonitis. (Sort of.) (But that’s a story for another day, perhaps.)

At the moment, I’m obediently doing run/walk intervals, just as my physiotherapist instructed me to. It’s not the same as running in one, delightful, uninterrupted trance, but I’m finding it joyful, all the same.

Following my path.

Running is many things to many people, as the plethora of books on the subject (ranging from how-to instruction manuals through to memoirs about how running helped heal someone’s grief or mental illness) will confirm. When I first started running three years ago, I devoured those books, seeking tips on technique (for which they were sometimes useful and sometimes not) and kindred spirits (which I sometimes found and sometimes didn’t).

But to be perfectly honest, I’ve grown tired of reading other runners’ thoughts on running. I’m tired of being exhorted to include speed runs and hill runs each week. I’m tired of being told, repeatedly, that unless I enter a race, I’ll never improve my PR. (Or is PB? I always forget. Is there a difference? If there is, I don’t understand it.) I’m tired of reading that running is a social activity, best done with friends. And I’m very, very tired of being told that, in order to prevent myself from getting injured, there is only one way to run (for example, barefoot running. Or forefoot striking. Or running very slowly. Or running a minimum of 180 steps per minute. Or running every day. Or ensuring that you never run two days in a row. Or practising yoga. Or focusing on strength-training. Or stretching before running. Or never stretching at all. Or running on an empty stomach. Or ensuring that you fuel up correctly before you run. Etc. Etc. Etc.)

Because what I’ve realised during my time away is that I don’t run to keep fit, or to challenge myself, or to keep my weight down. Nor do I run so that I can call myself an athlete, or to get faster, or to reduce my anxiety. I don’t even run, as some writers do, in the hope that I’ll get better at writing.

Sometimes, I admit, running helps with some of those things. But sometimes it doesn’t. I don’t run far, and I don’t run fast, but I’ll still keep running, anyway, for as long as I can, if I get the choice.

In the end, I run because I like running, and that’s enough for me.

Reflections along the way.

Lately I’ve been reading …

Milestone

Other people’s words about … why they run

You know, I have run all my life. From fights and bars and women and any number of tricky situations. I run to think and I run to not think. I ran even when I was drinking. Often, I would leave bars and run into the night, just keep going until the exhaustion or sheer drunkenness stopped me. I don’t run in groups or on teams, I don’t run in events or with friends. I don’t run for charity. I don’t run for fitness — I ran even when I was fat or when I smoked. I run for the same thing I have always run for. The solitude and the independence of spirit. The feeling of freedom. When I was in my early teens I read Alan Silitoe’s short story ‘The Loneliness of the Long-Distance Runner’ and had my psyche explained to me.

From ‘Riding the Elephant’
by Craig Ferguson

I haven’t been able to run for several months now, due to a niggling ankle/tendon injury that I’m still trying to work out how to fix. Despite this (or perhaps because of it), when I came across Craig Ferguson’s words about running recently, which I’ve quoted above, they struck such a chord within me that I couldn’t let them go.

Reflective

I turned fifty this past weekend. Like most people I know who have turned fifty ahead of me, the milestone left me feeling even more introspective and reflective and wistful (or maudlin? self-absorbed?) than I usually do.

And the niggling ankle injury certainly didn’t help.

Fading beauty

So here is a metaphor for you: today, I went for a ride on my bike. I stopped to take the photograph below, because it was such a lovely, sun-dappled, shady spot, and because I already had the caption for the photograph planned. It was: ‘Who knows what lies around the next turn?’ This seemed apt, since the road I was cycling along made a literal turn, and since, at fifty, I’m also at a metaphorical turning point.

But then, after I’d taken the photograph and got back on my bike, I actually did cycle around the turn … and got repeatedly swooped by a magpie all the rest of the way down the road.

There’s a lesson in that somewhere, if you’re fifty and feeling maudlin and introspective, right?

Round the bend

But back to Craig Ferguson and the point of this post. I run for the same thing I have always run for, he writes. The solitude and the independence of spirit. The feeling of freedom.

And (oh my goodness, yes): I run to think and I run to not think.

These are the reasons I run, too, and the reasons I hope I’ll run again, one day. Is that a vain hope? Perhaps. But the fifty-year-old in me has learned that hope is worth clinging to, because, against all logic, hope keeps you real. It keeps you true.